Hello all- The recordings of our first two NACFC 365 sessions have been posted! You can find them here:https://www.nacfconference.org/nacfc-365

Wonderful to have you all here today! Please feel free to put any questions you may have in the chat. We will do our best to address these in breakout groups or in large group discussion at the end.

POSTING AGAIN for those who logged in AFTER the first link was sent. The recordings of our first two NACFC 365 sessions have been posted! You can find them here:https://www.nacfconference.org/nacfc-365

Thank you!

If you haven't done so already, please make sure to download the course materials (different than what was originally sent to you): https://www.nacfconference.org/webinar-materials

Thank you all for joining us today! I'm happy to be here with you all.

Thank you, Shaina, for highlighting essential considerations for assessment and helping support interventions for depression early in childhood.

In addition to our course materials, you will find useful information in the module "Emotional Wellness in Children with CF under Age 12" in the Indiana University Cystic Fibrosis Continuing Education Course Five: Integrating Mental Health into Cystic Fibrosis Care. This online course was developed to support implementation of CF Foundation mental health guidelines and provides free continuing education credits for multiple disciplines: https://medicine.iu.edu/continuing-education/specialized/cystic-fibrosis

I am child life! I agree: we can be under-utilized

Thank you Kecia!

Thank you Kecia, great presentation

thank you Kecia for covering many CF-specific considerations for anxiety assessment and treatment

Where could we find that comfort/coping plan worksheet?

In the resource binder

https://www.nctsn.org/sites/default/files/resources//pediatric_toolkit_for_health_care_providers.pdf

here is another resource I found yesterday on the national child traumatic stress network-its a guide to pediatric medical traumatic stress

We have had quite a few kids with ASD in our clinic, for some it is presenting significant challenges around eating/feeding behaviors and also treatments, particularly the vest

Yes- clinic is often overstimulating for kids with ASD and for those with anxiety. Accommodations are important

We have one child in particular with ASD who cannot tolerate the vest, so our MD/RT have had to really adjust expectations around this

Please note that the NACFC 2021 course binder is split into two parts due to size but has the same cover pages. The first half includes material for Supporting Adults with CF to Raise Healthy Families, and the second half has resources relevant for today's NACFC 365 session, Mental Health Assessment and Intervention for Children Under 12. If you downloaded your course binder when you were first sent the Zoom link, or when you previously attended the raising healthy families NACFC 365 webinars, please double check that you have the children under 12 binder as well.

we have one child where we try to keep the clinic room lights off until a provider is on their way in and when we are getting PPE on we let the family know what we will be in and turning back on the lights. Also, because there is so much sensory seeking and objects to touch in the clinic room it has been essential to have parents bring preferred activities from home to help provide stimulation during the often lengthy CF appts.

Could we put that link in the chat?

Here is the link to access the course materials: https://www.nacfconference.org/webinar-materials

Oh sorry, I mean the one the speaker is referring to now. Focused intervention practices for patients with ASD

https://autismpdc.fpg.unc.edu/evidence-based-practices

Thanks!

Are there any centers who have more CF specific interventions/recommendations for kids with ASD, I recognize its very individual to the child

I use MATCH- it's great for addressing nuances of anxiety subtypes too for example

The Survey of Well-being of Young Childrenhttps://www.tuftschildrenshospital.org/The-Survey-of-Wellbeing-of-Young-Children/Overview

I want to remind people that even if you have never used some of these screeners, that's ok ! You can improve by just starting to use them more regularly - and also use your resources, including the listserv, and peer consult groups

We will now be opening the breakout rooms. Please accept the invite that pops up on your screen

Thank you!

Thank you!

Thank you!!!

Here is the link again to access the course materials: https://www.nacfconference.org/webinar-materials

Could you give us her email please for certificate ?

Thank you all! I have to pop off - amazing topic and looking forward to seeing everyone at NACFC!

Thank you all, so informative!!

rkim@cff.org to ask Rebekah Kim for the certificate

Thank you ! 😊

Thank you all for your attendance and participation and we hope that you have more resources available to you to take next steps within your role.

Thanks everyone for coming and participating in your groups!!

Thank you this was very interesting!!!!

Thank you all- appreciate your attention and active participation! See you at NACFC!

Thank You to everyone for showing up today !!

mentalhealth@cff.org

Thank you for joining us!

Thank you for great presentation!

See you at NACFC all, thank you so much for coming!