Good morning! Welcome to Emerging Weight Management Topics in CF. We will give everyone a few minutes to join the webinar and will begin shortly.

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From double lung transplant perspective, CF patients tend to gain weight post-tx even if not on modulators. Please be aware of this group as well. Our group tends to be ignored. I gained 50th post tx because I could breathe so easily, I didn’t need the high fat, caloric intake. I had a negative self image being thin most of my life.

*50lbs

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I had to change my diet.

My tx was 6 yrs ago.

Should each patient be seen by a RDN at every clinic visit in order to achieve optimal weight by counseling?

Is there any data suggesting patients on Trikafta with significant weight gain are more likely/ more quickly converting to CFRD? Or does Trikafta potentially improve glucose tolerance?

What next steps would you take for patients who have difficulty losing weight despite improved changes in diet and activity level?

I've heard this vicious diet cycle described as a pendulum. The more you restrict the more detrimental the rebound.

The BMI check in public schools is so awful. Starts kids early in shame about weight and body image

I agree. It's important to monitor weight in children, the BMI check was heavily stigmatized, and the topic was handled poorly. Kids were often told "just eat healthy!" without any consideration of their home environment and/or their accessibility to said healthy options.

Unfortunately ppl with CF are often bloated!

One of the most important things I learned is that sometimes someone just wants you to listen and don't necessarily need someone to try to "fix" the issue they're discussing. The reflective listening/responses are crucial for the relationship between clinician and patient. It assures them their provider is concerned about their overall health is going to be their advocate

How have the MDs HCPs responded to your new approach?

Does this approach also apply to CF pediatric patients?

Thank you for this amazing presentation. I'm looking forward to sharing the recording with my team. How do we reconcile how BMI was originally formed and using pediatric growth charts, monitoring BMI on them? Thank you

Really appreciate the emphasis long-range thinking- so exciting to thing about long-term health and wellness in CF

How do you navigate conversations regarding long term CFRD complications or cardiovascular complications due to diet when patients have spent their lives focusing on lung function and shorter life expectancies?

WE have seen it go both ways on glucose control. Seems to me patients who are eating more due to improved appetite have the expected increase in symptoms of CFRD or IGT and the patients who are eating less since they have improved lung function and well being see the improvement in symptoms of CFRD/IGT.

Will be interesting to follow development of new nutrition guidelines, because BMI remains a clinical outcome measure for CF care, and centers are compared based on this outcome specifically. What other markers might you use to 'measure' value of these new interventions- thinking about our centers and medical systems which require some of this potentially outdated ways of demonstrating clinical 'success' more broadly

This was a great presentation!. thank you!!

Thank you so much for joining us!

Thanks to all of you! Really inspirational

Wonderful information! Thank you!

Thank you so much