OHSU Adult Cystic Fibrosis Townhall - Shared screen with speaker view
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Thanks, Mary. Hopefully everyone looked at the flier!
Oh no! :(. If anyone joins at 5:30 we are recording this so we can get the link to them to view what was covered
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Thank you, Carly!
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So happy to see phage finally being considered for study.
So exciting. Hopeful it will also be studied soon for NTM
But that generous grant doesn’t allow the replacement of spirometers that go bad without repeated troubleshooting first….
In relation to OUR clinic have we seen a lot of side effects of Trikafta and if so, what are they?
There is a huge phage library in Philadelphia
Dr. Schooly and IPath ❤️
What is that app called?
Oh I thought heard MIR spirobank or something like that
Thanks Daniella :)
MIR Spirobank is another option for spirometry that I can use.
Okay! But that’s not an app that we download on our end?
yes, it will work with this spirometer.
and you can download it to your phone
Ok cool, thank you!
I have one patient that uses iSpirometry - Apps on Google Play. It has connected also to the device
You are welcome, Kirsten!!
OK thank you!
Not sure if this is helpful, but I use a plant based half and half that has a lot of fat- 4 grams for 2 tablespoons. The brand is called Ripple (great in coffee fyi)
That’s very helpful, thanks Joseph!
Awesome, thank you!
Thanks Aaron! Asking for a friend ;)
Here's the link to plant-based half and half that Joe was talking abouthttps://www.ripplefoods.com/original-half-and-half/
thank you! its been a worry for me so this is so helpful
Key: Read the labels!
My favorite is Nuun! (tablets - low sugar!!)
It’s an amazing world that we are even having these conversations!
Yes it is!
I just want to say thank you to everyone for your time and commitment to the CF community. You are the best!!
Thanks, Mary!! WE feel the same way about all of y'all!! :) :)
Yes they are!
“all y’all” — so glad to have a southerner among us :)
Agreed, Kirsten! That is a big concern for a lot of folks!
Thanks, Aaron!! Glad to be here w/y'all!! :)
Thank you to my wonderful CF Team! And thanks to the attendees for their information!
Thank you! Bye!