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OHSU Adult Cystic Fibrosis Townhall - Shared screen with speaker view
Ash Swift
08:53
Thanks, Mary. Hopefully everyone looked at the flier!
Joseph Boyd
09:25
Oh no! :(. If anyone joins at 5:30 we are recording this so we can get the link to them to view what was covered
Carly Christensen
09:43
If anyone wants other attendees to see their comments as well as the panelists you can change that option right above the type box
Ash Swift
10:13
Thank you, Carly!
Kathy Shannon
10:37
Thanks Carley!
Mary Pozsgai
11:06
👍
Ash Swift
11:09
Please be sure to set your comments to go to "All panelists and attendees"
Mary Pozsgai
35:51
So happy to see phage finally being considered for study.
Mary Pozsgai
37:12
So exciting. Hopeful it will also be studied soon for NTM
Kathy Shannon
40:50
But that generous grant doesn’t allow the replacement of spirometers that go bad without repeated troubleshooting first….
Kathy Shannon
44:08
In relation to OUR clinic have we seen a lot of side effects of Trikafta and if so, what are they?
Mary Pozsgai
45:40
There is a huge phage library in Philadelphia
Mary Pozsgai
47:05
Dr. Schooly and IPath ❤️
Carly Christensen
51:38
What is that app called?
Daniella Gardner
52:16
Breathe Easy
Carly Christensen
53:17
Oh I thought heard MIR spirobank or something like that
Carly Christensen
54:06
Thanks Daniella :)
Daniella Gardner
54:37
:)
Kim Keeling
56:27
MIR Spirobank is another option for spirometry that I can use.
Carly Christensen
56:57
Okay! But that’s not an app that we download on our end?
Kim Keeling
57:34
yes, it will work with this spirometer.
Kim Keeling
57:44
and you can download it to your phone
Carly Christensen
58:13
Ok cool, thank you!
Kim Keeling
59:26
I have one patient that uses iSpirometry - Apps on Google Play. It has connected also to the device
Ash Swift
01:12:31
You are welcome, Kirsten!!
Megan Roggero
01:14:36
OK thank you!
Joseph Boyd
01:17:06
Not sure if this is helpful, but I use a plant based half and half that has a lot of fat- 4 grams for 2 tablespoons. The brand is called Ripple (great in coffee fyi)
Carly Christensen
01:17:28
That’s very helpful, thanks Joseph!
Joseph Boyd
01:18:08
you bet!
Daniella Gardner
01:18:31
Awesome, thank you!
Carly Christensen
01:19:34
Thanks Aaron! Asking for a friend ;)
Aaron Trimble
01:20:26
https://www.opb.org/article/2021/06/23/oregon-washington-weather-high-temperatures/
Daniella Gardner
01:20:56
Here's the link to plant-based half and half that Joe was talking abouthttps://www.ripplefoods.com/original-half-and-half/
Megan Roggero
01:21:21
https://www.healthline.com/health/digestive-health/types-of-poop#What-is-normal-poop?
Megan Roggero
01:22:00
thank you! its been a worry for me so this is so helpful
Gopal Allada
01:22:45
Key: Read the labels!
Kate Cornelius
01:23:18
My favorite is Nuun! (tablets - low sugar!!)
Daniella Gardner
01:24:34
<2
Daniella Gardner
01:24:36
<3
Kim Keeling
01:24:41
:)
Colleen Turner
01:24:59
:)
Mary Pozsgai
01:27:13
It’s an amazing world that we are even having these conversations!
Carly Christensen
01:28:29
Yes it is!
Mary Pozsgai
01:32:15
I just want to say thank you to everyone for your time and commitment to the CF community. You are the best!!
Colleen Turner
01:33:09
Thanks, Mary!! WE feel the same way about all of y'all!! :) :)
Mary Pozsgai
01:33:46
💜
Kirsten Ricketts
01:33:47
Yes they are!
Aaron Trimble
01:33:55
“all y’all” — so glad to have a southerner among us :)
Ash Swift
01:34:23
Agreed, Kirsten! That is a big concern for a lot of folks!
Colleen Turner
01:34:34
Thanks, Aaron!! Glad to be here w/y'all!! :)
Carol Birch
01:35:22
Thank you to my wonderful CF Team! And thanks to the attendees for their information!
Kathy Shannon
01:35:28
bye
Carly Christensen
01:35:36
Thank you! Bye!