
08:53
Thanks, Mary. Hopefully everyone looked at the flier!

09:25
Oh no! :(. If anyone joins at 5:30 we are recording this so we can get the link to them to view what was covered

09:43
If anyone wants other attendees to see their comments as well as the panelists you can change that option right above the type box

10:13
Thank you, Carly!

10:37
Thanks Carley!

11:06
👍

11:09
Please be sure to set your comments to go to "All panelists and attendees"

35:51
So happy to see phage finally being considered for study.

37:12
So exciting. Hopeful it will also be studied soon for NTM

40:50
But that generous grant doesn’t allow the replacement of spirometers that go bad without repeated troubleshooting first….

44:08
In relation to OUR clinic have we seen a lot of side effects of Trikafta and if so, what are they?

45:40
There is a huge phage library in Philadelphia

47:05
Dr. Schooly and IPath ❤️

51:38
What is that app called?

52:16
Breathe Easy

53:17
Oh I thought heard MIR spirobank or something like that

54:06
Thanks Daniella :)

54:37
:)

56:27
MIR Spirobank is another option for spirometry that I can use.

56:57
Okay! But that’s not an app that we download on our end?

57:34
yes, it will work with this spirometer.

57:44
and you can download it to your phone

58:13
Ok cool, thank you!

59:26
I have one patient that uses iSpirometry - Apps on Google Play. It has connected also to the device

01:12:31
You are welcome, Kirsten!!

01:14:36
OK thank you!

01:17:06
Not sure if this is helpful, but I use a plant based half and half that has a lot of fat- 4 grams for 2 tablespoons. The brand is called Ripple (great in coffee fyi)

01:17:28
That’s very helpful, thanks Joseph!

01:18:08
you bet!

01:18:31
Awesome, thank you!

01:19:34
Thanks Aaron! Asking for a friend ;)

01:20:26
https://www.opb.org/article/2021/06/23/oregon-washington-weather-high-temperatures/

01:20:56
Here's the link to plant-based half and half that Joe was talking abouthttps://www.ripplefoods.com/original-half-and-half/

01:21:21
https://www.healthline.com/health/digestive-health/types-of-poop#What-is-normal-poop?

01:22:00
thank you! its been a worry for me so this is so helpful

01:22:45
Key: Read the labels!

01:23:18
My favorite is Nuun! (tablets - low sugar!!)

01:24:34
<2

01:24:36
<3

01:24:41
:)

01:24:59
:)

01:27:13
It’s an amazing world that we are even having these conversations!

01:28:29
Yes it is!

01:32:15
I just want to say thank you to everyone for your time and commitment to the CF community. You are the best!!

01:33:09
Thanks, Mary!! WE feel the same way about all of y'all!! :) :)

01:33:46
đź’ś

01:33:47
Yes they are!

01:33:55
“all y’all” — so glad to have a southerner among us :)

01:34:23
Agreed, Kirsten! That is a big concern for a lot of folks!

01:34:34
Thanks, Aaron!! Glad to be here w/y'all!! :)

01:35:22
Thank you to my wonderful CF Team! And thanks to the attendees for their information!

01:35:28
bye

01:35:36
Thank you! Bye!