Supporting Adults with CF to Raise Healthy Families - Shared screen with speaker view
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Hi everyone! Welcome to Supporting Adults with CF to Raise Healthy Families (Part 2). We will begin shortly
If you have not already done so, please make sure to download the course materials: https://www.nacfconference.org/webinar-materials
Are these the same materials as last week? Or new ones?
Welcome, everyone! Please feel free to add questions to the chat--we will try to address them after the experiential practice session as time allows.
Hi everyone! I am excited for this session and to hear Jen's story!
Jen, your daughter looks JUST like you! :)
Thank you, Jen!!
As a CF parent I totally understand the "protecting"
Thanks Jen and Virginia for giving CFReSHC a shout out!! I'm a co-founder of CFReSHC. We are now seeking clinics to give us feedback on chapters in our online guide. Email me if your clinic would like to review one! email@example.com
Elinor Schwind, on this call as well, is an Advisory Board member of CFReSHC too. 🙂
lucky you Jen.
Oh my, there are so many learnings from this powerful presentation! thank you!!
As a nurse, it's safe to say they are both lucky :)
Thank you so much Jenn!
Thank you, Ginger and Jen!
Wonderful presentation thank you!
Yes, thank you!!!!
Thank you both for a wonderful presentation!
I am so sorry, I have an urgent matter that I must tend to in the clinic; I apologize for my early departure. Thank you all so much for your time, passion, and dedication. This is such an important topic to broach and I am so grateful to be a part of such a great team. Thank you, again. -Rosa
Great info to share with patients! thanks!
In addition to the 2 that Ginger showed earlier, there is a 3rd handout in the Parenting as an Adult with Cystic Fibrosis series, which focuses on understanding child temperament and development. All 3 handouts are found in your course materials, which you can access through the link in the email you received with today's Zoom information, or on cff.org.
These are all so great!
Claudia, that is so important. Life is Messy, embrace it ! Be in the present and enjoy that time
Thanks so much to both of you for sharing your experiences!!!
Ann O'Leary Amato
Wonderful talk--were there ways that the CF Clinic team supported you? Were there things you wish the team had done that would have helped?
Claudia and Jen, thank you for sharing your amazing story!
This story was such a beautiful illustration of our key points, thank you for sharing with us
A dynamic duo! Thank you to Claudia and Jen for allowing us in:)
Thank you both for sharing your beautiful story with us
Thank you for your participation
Thank you to all for showing up and participating !
Thank you all for being with us today! Jen and Claudia- I've learned so much from the two of you!
Thank you to for joining us today, everyone!
Jen and Claudia THANK YOU
Thank you all for coming today!!
Can you please share the link to register?
Here is the link to the session on October 4: https://cff.zoom.us/meeting/register/tJcvdu6rqz4vEtF2ppoJ_MMyD-kHUdTTIuY-
This was amazing. Thank you so much. I’m excited to read through all of the resources and to attend the next session