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Supporting Adults with CF to Raise Healthy Families - Shared screen with speaker view
Rebekah Kim
34:55
Hi everyone! Welcome to Supporting Adults with CF to Raise Healthy Families (Part 2). We will begin shortly
Rebekah Kim
36:50
If you have not already done so, please make sure to download the course materials: https://www.nacfconference.org/webinar-materials
Kate Yablonsky
38:01
Are these the same materials as last week? Or new ones?
Anna Georgiopoulos
38:53
Welcome, everyone! Please feel free to add questions to the chat--we will try to address them after the experiential practice session as time allows.
Beth Smith
39:54
Hi everyone! I am excited for this session and to hear Jen's story!
Kate Yablonsky
40:19
Jen, your daughter looks JUST like you! :)
Stephanie Filigno
40:47
Thank you, Jen!!
Sandy corr
44:50
As a CF parent I totally understand the "protecting"
Sandy Sufian
52:40
Thanks Jen and Virginia for giving CFReSHC a shout out!! I'm a co-founder of CFReSHC. We are now seeking clinics to give us feedback on chapters in our online guide. Email me if your clinic would like to review one! sufians@uic.edu
Sandy Sufian
53:31
Elinor Schwind, on this call as well, is an Advisory Board member of CFReSHC too. šŸ™‚
Sandy Sufian
01:08:18
lucky you Jen.
Stephanie Filigno
01:09:06
Oh my, there are so many learnings from this powerful presentation! thank you!!
Rosa Mascola
01:09:16
As a nurse, it's safe to say they are both lucky :)
Sandy Sufian
01:10:35
cfreshc.org/srh-guide
Sandy corr
01:10:55
Thank you so much Jenn!
Rosa Mascola
01:11:01
Thank you!
Stephanie Filigno
01:11:04
Thank you, Ginger and Jen!
Elinor Langfelder-Schwind
01:11:07
Wonderful presentation thank you!
Claire Haglund
01:11:19
Yes, thank you!!!!
Beth Smith
01:11:42
Thank you both for a wonderful presentation!
Suzanne Roberson
01:13:14
Thank you!
Rosa Mascola
01:23:15
I am so sorry, I have an urgent matter that I must tend to in the clinic; I apologize for my early departure. Thank you all so much for your time, passion, and dedication. This is such an important topic to broach and I am so grateful to be a part of such a great team. Thank you, again. -Rosa
Angela Dziok
01:35:28
Great info to share with patients! thanks!
Anna Georgiopoulos
01:38:25
In addition to the 2 that Ginger showed earlier, there is a 3rd handout in the Parenting as an Adult with Cystic Fibrosis series, which focuses on understanding child temperament and development. All 3 handouts are found in your course materials, which you can access through the link in the email you received with today's Zoom information, or on cff.org.
Virginia Birnbaum
01:40:46
These are all so great!
Kecia Nelson
01:53:47
Claudia, that is so important. Life is Messy, embrace it ! Be in the present and enjoy that time
Anna Georgiopoulos
01:54:38
Thanks so much to both of you for sharing your experiences!!!
Ann O'Leary Amato
01:54:58
Wonderful talk--were there ways that the CF Clinic team supported you? Were there things you wish the team had done that would have helped?
Beth Smith
01:55:25
Claudia and Jen, thank you for sharing your amazing story!
Kecia Nelson
01:55:55
This story was such a beautiful illustration of our key points, thank you for sharing with us
Virginia Birnbaum
01:55:57
A dynamic duo! Thank you to Claudia and Jen for allowing us in:)
Sandy corr
01:56:51
Thank you both for sharing your beautiful story with us
Beth Smith
02:23:37
Thank you for your participation
Heidi Krauss
02:35:05
Thanks everyone!
Kecia Nelson
02:35:22
Thank you to all for showing up and participating !
Shaina Blair
02:35:24
Thank you all for being with us today! Jen and Claudia- I've learned so much from the two of you!
Rebekah Kim
02:35:34
Thank you to for joining us today, everyone!
Kecia Nelson
02:35:36
Jen and Claudia THANK YOU
Anna Georgiopoulos
02:35:37
Thank you all for coming today!!
Ash Swift
02:35:38
Can you please share the link to register?
Rebekah Kim
02:35:58
Here is the link to the session on October 4: https://cff.zoom.us/meeting/register/tJcvdu6rqz4vEtF2ppoJ_MMyD-kHUdTTIuY-
Ash Swift
02:36:04
Thank you!
Amy Sangvai
02:36:25
This was amazing. Thank you so much. Iā€™m excited to read through all of the resources and to attend the next session