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Emerging Weight Management Topics in CF - Shared screen with speaker view
Rebekah Kim
34:44
Good morning! Welcome to Emerging Weight Management Topics in CF. We will give everyone a few minutes to join the webinar and will begin shortly.
Mahsa Farsad
35:10
Good morning!
Rachel Janney
35:20
Good morning!
Carla Nowicki
35:25
Good Morning! Thank you for hosting this!
Shelby Birdwell
35:37
Good morning!
Cheryl Coyne
35:43
Good Morning!
Jean Tomezsko
35:55
Good Morning!
Dee Shimmin
36:01
Good afternoon from Leeds Uk!
Cait Sheppard
36:07
Good Morning!
Ashley Wight
36:08
Good morning everyone!
Julie Henshaw
36:16
Good Morning!
Paula Bowen
36:26
Good Morning
Ashley Thackeray
36:32
Good morning!! Thank you for hosting this Webinar!
Phoebe Symons
36:40
good afternoon from South Wales UK!
Jill Popeck
36:59
Good Morning! Looking forward to this!
Shaina Blair
37:24
Morning!
Paula Lomas
37:41
So wonderful to see all of you here!
Tina Fisher
37:57
Hello from San Diego 🌹
Lisa Stackhouse
40:26
Hello everyone!
Lisa Stackhouse
45:55
From double lung transplant perspective, CF patients tend to gain weight post-tx even if not on modulators. Please be aware of this group as well. Our group tends to be ignored. I gained 50th post tx because I could breathe so easily, I didn’t need the high fat, caloric intake. I had a negative self image being thin most of my life.
Lisa Stackhouse
46:25
*50lbs
Rebekah Kim
46:47
Please make sure to type your questions into this Chat
Lisa Stackhouse
46:55
I had to change my diet.
Lisa Stackhouse
48:17
My tx was 6 yrs ago.
Jean Tomezsko
01:01:23
Should each patient be seen by a RDN at every clinic visit in order to achieve optimal weight by counseling?
Shaina Blair
01:06:10
Is there any data suggesting patients on Trikafta with significant weight gain are more likely/ more quickly converting to CFRD? Or does Trikafta potentially improve glucose tolerance?
Rachel Janney
01:07:16
What next steps would you take for patients who have difficulty losing weight despite improved changes in diet and activity level?
Rachel Janney
01:17:13
I've heard this vicious diet cycle described as a pendulum. The more you restrict the more detrimental the rebound.
Melissa Shiffman
01:18:23
The BMI check in public schools is so awful. Starts kids early in shame about weight and body image
Rachel Janney
01:21:37
I agree. It's important to monitor weight in children, the BMI check was heavily stigmatized, and the topic was handled poorly. Kids were often told "just eat healthy!" without any consideration of their home environment and/or their accessibility to said healthy options.
Melissa Shiffman
01:39:03
Unfortunately ppl with CF are often bloated!
Rachel Janney
01:40:03
One of the most important things I learned is that sometimes someone just wants you to listen and don't necessarily need someone to try to "fix" the issue they're discussing. The reflective listening/responses are crucial for the relationship between clinician and patient. It assures them their provider is concerned about their overall health is going to be their advocate
Emily Russell
01:55:13
How have the MDs HCPs responded to your new approach?
Rachel Janney
01:56:27
Does this approach also apply to CF pediatric patients?
Sarah Evans
01:56:45
Thank you for this amazing presentation. I'm looking forward to sharing the recording with my team. How do we reconcile how BMI was originally formed and using pediatric growth charts, monitoring BMI on them? Thank you
Shaina Blair
01:57:05
Really appreciate the emphasis long-range thinking- so exciting to thing about long-term health and wellness in CF
Phoebe Symons
01:57:37
How do you navigate conversations regarding long term CFRD complications or cardiovascular complications due to diet when patients have spent their lives focusing on lung function and shorter life expectancies?
Emily Russell
02:00:04
WE have seen it go both ways on glucose control. Seems to me patients who are eating more due to improved appetite have the expected increase in symptoms of CFRD or IGT and the patients who are eating less since they have improved lung function and well being see the improvement in symptoms of CFRD/IGT.
Shaina Blair
02:04:43
Will be interesting to follow development of new nutrition guidelines, because BMI remains a clinical outcome measure for CF care, and centers are compared based on this outcome specifically. What other markers might you use to 'measure' value of these new interventions- thinking about our centers and medical systems which require some of this potentially outdated ways of demonstrating clinical 'success' more broadly
Natalia Argel
02:20:26
This was a great presentation!. thank you!!
Rebekah Kim
02:20:51
Thank you so much for joining us!
Dee Shimmin
02:20:52
Thanks to all of you! Really inspirational
Shaina Blair
02:20:56
Wonderful information! Thank you!
Alicia Casals
02:21:00
Thank you so much